The mission of PHACE Syndrome Community is to support research and advocacy around the cause and treatment of PHACE, to create and support the community of affected families, to sponsor conventions, meetings, and gatherings for the community and the doctors supporting the community, and to perform fundraising to support the mission. To learn more, visit the website.
“The PHACE Syndrome Community is honored to partner with [the Kids First DRC]. PHACE Syndrome is a young diagnosis with only minimal high level research outcomes published to date. We feel our collaboration with Kids First will now yield substantial advances in the understanding of the genetic basis of PHACE syndrome but offer deeper insight to the correlation of structural birth defects and disease moving into the future.” – PHACE Syndrome Community
