Coming Summer 2018!

The beta version of the Kids First Data Resource Portal will be releasing to the public in Summer 2018! This resource connects researchers, clinicians, and patients from the childhood cancer and structural birth defect communities and their families, supporters, and advocates to help access and share genetic data in order to accelerate research and promote new discoveries.

Data Portal at a Glance


Our Partners


Biomedical researchers and data scientists interested in data analysis, cross-disease research, and real-time collaboration.

Community Member

Patients, families, and foundations interested in learning more about current research and connecting with researchers in specific disease areas.


Physician scientists interested in finding the latest research to target patients’ needs based on genetic characteristics.

Kids First News & Events

investigator spotlight
May 01, 2018

Eleanor Feingold

University of Pittsburgh

“Kids First is an unprecedented deep dive into the root causes of cancers and birth defects.It gives us the opportunity to learn what..."

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Study Updates
April 20, 2018

Largest Pediatric Brain Tumor Data Set Available in Kids First DRC Portal

The Children’s Brain Tumor Tissue Consortium (CBTTC) and the Pacific Pediatric Neuro-Oncology Consortia (PNOC) are dedicated to...

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April 15, 2018

Patient/Foundation Workshop

On Tuesday, November 14, 2017, more than 30 patient family advocates and foundation representatives from the pediatric cancer and structural...

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Funding & Support

The Kids First Data Resource Center is funded by the NIH Common Fund and support by member institutions.