Data Resource Portal Now Available to the Public!

Data from approximately 8,000 DNA and RNA samples from children affected with cancer or structural birth defects and their families is ready for analysis. This number is expected to grow to more than 30,000 over the next few years. This will enable researchers, clinicians, and patients to work together to accelerate research and promote new discoveries. To learn how to get started using the Data Resource Portal, CLICK HERE TO GET STARTED!

Available Data
Note: Due to technical limitations, these counts currently include TARGET AML & Neuroblastoma, whose meta data are only indexed on the portal. The genomic data does not reside at the DRC.


Our Partners


Search, view, analyze, and identify currently accessible data along with your own to support your research

Healthcare Professionals

Map patients in your disease of interest by disease characteristics and view molecular profiling

Patients/Family Members

Learn about disease-specific research, become a Kids First partner, and support data sharing

Community Members

Learn about scientific discoveries in pediatric cancer and structural birth defects

Get Involved!

Join now and start exploring this useful portal.

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Already Registered?

Log in and collaborate on important pediatric research.

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Kids First News & Events

investigator spotlight

May 14, 2019

Adam Resnick, PhD

Children's Hospital of Philadelphia

“Pediatric cancers, structural birth defects, and other diseases of development likely share mechanisms that..."

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foundation spotlight

April 12, 2019

PHACE Syndrome Community

“The PHACE Syndrome Community is honored to partner with [the Kids First DRC]..."

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investigator spotlight

April 08, 2019

Dawn Siegel, MD

Medical College of Wisconsin

"Dr. Siegel has a particular interest in general pediatric dermatology..."

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Funding & Support

The Kids First Data Resource Center is funded by the NIH Common Fund and collaborates with member institutions.