Data Resource Portal Now Available to the Public!

Data from approximately 8,000 DNA and RNA samples from children affected with cancer or structural birth defects and their families is ready for analysis. This number is expected to grow to more than 30,000 over the next few years. This will enable researchers, clinicians, and patients to work together to accelerate research and promote new discoveries. To learn how to get started using the Data Resource Portal, CLICK HERE TO GET STARTED!

Available Data


Our Partners


Search, view, analyze, and identify currently accessible data along with your own to support your research

Healthcare Professionals

Map patients in your disease of interest by disease characteristics and view molecular profiling

Patients/Family Members

Learn about disease-specific research, become a Kids First partner, and support data sharing

Community Members

Learn about scientific discoveries in pediatric cancer and structural birth defects

Get Involved!

Join now and start exploring this useful portal.

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Already Registered?

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Kids First News & Events

foundation spotlight

September 28, 2018

Craniofacial Conditions

Craniofacial Conditions Spotlight

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investigator spotlight

September 20, 2018

Adam Resnick, PhD

Children's Hospital of Philadelphia

"Pediatric cancers, structural birth defects, and other diseases of development likely share mechanisms..."

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Study Updates
September 04, 2018

Kids First CCDD Data Available for Access

The Kids First Data Resource Center is pleased to announce that whole genome sequence data for...

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Funding & Support

The Kids First Data Resource Center is funded by the NIH Common Fund and collaborates with member institutions.