Data Resource Portal Now Available to the Public!

Data from approximately 8,000 DNA and RNA samples from children affected with cancer or structural birth defects and their families is ready for analysis. This number is expected to grow to more than 30,000 over the next few years. This will enable researchers, clinicians, and patients to work together to accelerate research and promote new discoveries. To learn how to get started using the Data Resource Portal, CLICK HERE TO GET STARTED!

Available Data


Our Partners


Search, view, analyze, and identify currently accessible data along with your own to support your research

Healthcare Professionals

Map patients in your disease of interest by disease characteristics and view molecular profiling

Patients/Family Members

Learn about disease-specific research, become a Kids First partner, and support data sharing

Community Members

Learn about scientific discoveries in pediatric cancer and structural birth defects

Get Involved!

Join now and start exploring this useful portal.

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Already Registered?

Log in and collaborate on important pediatric research.

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Kids First News & Events

investigator spotlight

March 05, 2019

Nara Sobreira, MD, PhD

Johns Hopkins University

"Kids First is a valuable program because of its focus on data sharing to initiate collaborations..."

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foundation spotlight

February 12, 2019

The Dragon Master Foundation

"The Kids First Data Resource Center is a vital next step forward to understand structural birth defects and pediatric cancer..."

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foundation spotlight

January 18, 2019

The Grayson Saves Foundation Spotlight

“The Kids First Data Resource Center is the most innovative, robust initiative that will make a difference in the ugly world of Cancer."

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Funding & Support

The Kids First Data Resource Center is funded by the NIH Common Fund and collaborates with member institutions.