Data Resource Portal Now Available!

The beta version of the Kids First Data Resource Portal is now available! This resource connects researchers, clinicians, and patients from the childhood cancer and structural birth defect communities and their families, supporters, and advocates to help access and share genetic data in order to accelerate research and promote new discoveries.

Data Portal at a Glance


Our Partners


Biomedical researchers and data scientists who are interested in genomics research.

Healthcare Professionals

Physician scientists who are interested in finding the latest research to target patients’ needs based on genetic characteristics.

Patients/Family Members

Patients, families, and foundations interested in learning more about current research and connecting with researchers in specific disease areas.

Community Members

Anyone interested in learning about scientific discoveries in pediatric cancer and structural birth defects.

Kids First News & Events

foundation spotlight
August 16, 2018

The Moebius Syndrome Foundation

“The Moebius Syndrome Foundation is happy to support the Kids First Data Resource Center. We are thrilled to do anything we can..."

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investigator spotlight
August 09, 2018

Cynthia Morton, PhD and Jun Shen, PhD

Brigham and Women's Hospital, Harvard Medical School

"Kids First is a valuable program for studying hearing loss..."

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foundation spotlight
July 12, 2018

CDH International

"CDH International, was created to help families of babies born with Congenital Diaphragmatic Hernia by providing support services, promoting research, and raising awareness..."

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Funding & Support

The Kids First Data Resource Center is funded by the NIH Common Fund and supported by member institutions.