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THE VALUE OF KIDS FIRST
KIDS COME FIRST IN SCIENTIFIC RESEARCH
Thousands of children are diagnosed with cancer and congenital disorders each year, impacting families emotionally and financially. The Gabriella Miller Kids First Pediatric Research Program (Kids First), funded and administered by the National Institutes of Health (NIH) Common Fund, aims to alleviate some of that hardship by improving how we diagnose, treat, and eventually eliminate these threats. This program is a valuable resource for researchers and is a critical investment in pediatric research.
The Kids First Data Resource Center (Kids First DRC) provides robust genetic and clinical data for pediatric cancer and congenital disorders. Kids First data is accessible to researchers worldwide, free of charge, to help us understand these diseases better.
While this valuable program is funded through 2024, Kids First needs continued support to pursue its essential work well into the future.
DISCOVER A NEW APPROACH TO RESEARCH
Kids First is the leading global contributor of pediatric studies for research
35
STUDIES
550
DATA ACCESS REQUESTS
6,500
+
USERS
100
k+
SAMPLES
188
k+
FILES
27000
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PATIENT AND FAMILY PARTICIPANTS
STOP TALKING, START DOING
Gabriella’s Story
The Gabriella Miller Kids First Research Act was enacted in April 2014, less than six months after 10-year-old child cancer research advocate Gabriella Miller died from an inoperable brain tumor.
Her efforts to raise childhood cancer awareness, and its connection to congenital disorders, raised hundreds of thousands of dollars for children’s cancer charities. Through her passionate advocacy, Congress passed the Gabriella Miller Kids First Research Act to direct funding into the NIH Common Fund over ten years to support pediatric research.
Gabriella’s mother, Ellyn Miller, continues her daughter’s work to demand better treatments and cures for kids through the Smashing Walnuts Foundation.
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JOIN OUR ONLINE COMMUNITY
Check out the latest news and updates from the Kids First DRC
Follow @kidsfirstdrc
Email info@kidsfirstdrc.org
PHILIP LUPO, PhD, MPH
BAYLOR COLLEGE OF MEDICINE
By using Kids First data, we can explore a range of questions related to the overlap between anomalies and cancer in ways that were previously impossible.
IAN KRANTZ, MD
CHILDREN'S HOSPITAL OF PHILADELPHIA
I'm excited to be involved with Kids First. Data sharing for research will drive discovery and understanding of birth differences, leading to better outcomes for affected children and families.
ARIADNE LETRA, DDS, MS, PhD
UNIVERSITY OF PITTSBURGH SCHOOL OF DENTAL MEDICINE
Kids First is valuable because the sequencing resource provides the basis for identifying genetic contributions to common and deforming craniofacial birth defects.
AMANDA HADDOCK
PARENT, PRESIDENT, DRAGON MASTER INITIATIVE
Kids First is leading the way in a rapidly changing healthcare and research environment. They saw the need to empower research across conditions that have.
ELLYN MILLER
GABRIELLA'S MOTHER; President, Smashing Walnuts Foundation
Kids First supports lifesaving research of treatments for childhood cancer for use by researchers in the USA and around the globe. We can’t afford to lose this most valuable program.
NECIA SABIN
HETOROTAXY CONNECTION
Until you have had doctors google your child's diagnosis, you will never understand the isolation and loneliness a parent feels when their child has a rare disease. The Kids First Database has given our community the opportunity to bring medical professionals together and give them the information they desperately need to advance research and care for the Heterotaxy community. We are beyond grateful for this amazing resource and are excited to see the advancements made with it.
News & Articles
Cross-Institution Database Drives New Pediatric Research Opportunity
Childhood cancer research has taken a monumental step forward with the launch of the Childhood Cancer Data Initiative (CCDI), a groundbreaking effort spearheaded by the National Cancer Institute (NCI). Childhood…
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New Data Sets from NIH Kids First Program Accelerates Rare Childhood Disease Research
This article was published as a news release on EurekAlert, shared on Feb 5, 2025. The new Kids First datasets advance our understanding of how genetics contribute to childhood cancers…
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Children’s Brain Tumor Network Dataset Now Accessible on Kids First Data Resource Center Portal
View this press release on PR Newswire The Gabriella Miller Kids First Data Resource Center (Kids First DRC) announces the addition of the full Children’s Brain Tumor Network (CBTN) dataset…
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NIH Kids First Program announces the release of three new pediatric research datasets exploring childhood rare disease
These new datasets further support the effort to understand the genetic causes and links between childhood cancers and congenital disorders. WHO: The Gabriella Miller Kids First Pediatric Research Program (Kids…
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