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About
About
Kids First
A collaborative pediatric research effort, Kids First seeks to drive understanding of the genetic causes and links between childhood cancer and structural birth defects.
Community
A caring coalition of community foundations and childhood health nonprofits stands behind the continued success of the Kids First Data Resource Center.
Portal Tour
Anyone can explore the Kids First DRC portal with ease. Learn how here.
FAQs
Discover answers to common questions about the data, tools, and resources you can apply to empower childhood cancer and rare disease research.
About Kids First
Kids First Data Resource Center enables researchers, clinicians, and patients to work together to accelerate research and promote new discoveries for children affected with cancer and congenital disorders.
Resources
Portal
Data
Access an extensive collection of quality genomic and clinical data harmonized by the Kids First Data Resource Center.
Tools
Cloud-based tools aid researchers in exploration, discovery, analysis, and study for a deeper understanding of childhood cancer and rare diseases.
Publications
Read about the tremendous strides made possible through valuable research contributions informed by Kids First data.
Studies
Empower your research through Kids First Data. Discover the robust collection of childhood cancer, congenital disorder, and cross-condition data available now.
Grants
Discover support and funding options that fuel Kids First-driven research.
Help Center
Get your research started or move ahead with the help of the Kids First Data Resource Center.
Portal Login
Register or login to the Kids First Portal.
Resources
These datasets are harmonized with best-practice open-source pipelines developed by the Kids First Data Resource Center team based on deep experience with pediatric data and community feedback.
News
News
Articles
Stay updated about Kids First news, happenings, and perspectives.
Events
Join us for upcoming virtual and in-person events that inform, engage, and inspire.
Press
Read what the media buzz is all about at Kids First.
News
Learn more about the Kids First Data Resource Center through articles and publications written by experts.
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« All Events
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2024 Rare Disease Day
February 29, 2024 @ 8:00 am
-
5:00 pm
2024 Community Webinar
»
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Details
Date:
February 29, 2024
Time:
8:00 am - 5:00 pm
Website:
https://ncats.nih.gov/news-events/events/rdd
Organizer
Rare Disease Day – NCATS
Venue
Washington, DC
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About
About
Kids First
A collaborative pediatric research effort, Kids First seeks to drive understanding of the genetic causes and links between childhood cancer and structural birth defects.
Community
A caring coalition of community foundations and childhood health nonprofits stands behind the continued success of the Kids First Data Resource Center.
Portal Tour
Anyone can explore the Kids First DRC portal with ease. Learn how here.
FAQs
Discover answers to common questions about the data, tools, and resources you can apply to empower childhood cancer and rare disease research.
About Kids First
Kids First Data Resource Center enables researchers, clinicians, and patients to work together to accelerate research and promote new discoveries for children affected with cancer and congenital disorders.
Resources
Portal
Data
Access an extensive collection of quality genomic and clinical data harmonized by the Kids First Data Resource Center.
Tools
Cloud-based tools aid researchers in exploration, discovery, analysis, and study for a deeper understanding of childhood cancer and rare diseases.
Publications
Read about the tremendous strides made possible through valuable research contributions informed by Kids First data.
Studies
Empower your research through Kids First Data. Discover the robust collection of childhood cancer, congenital disorder, and cross-condition data available now.
Grants
Discover support and funding options that fuel Kids First-driven research.
Help Center
Get your research started or move ahead with the help of the Kids First Data Resource Center.
Portal Login
Register or login to the Kids First Portal.
Resources
These datasets are harmonized with best-practice open-source pipelines developed by the Kids First Data Resource Center team based on deep experience with pediatric data and community feedback.
News
News
Articles
Stay updated about Kids First news, happenings, and perspectives.
Events
Join us for upcoming virtual and in-person events that inform, engage, and inspire.
Press
Read what the media buzz is all about at Kids First.
News
Learn more about the Kids First Data Resource Center through articles and publications written by experts.
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Cloud Credits Inquiry
First Name
(Required)
Last Name
(Required)
Email
(Required)
Which Kids First Portal datasets would you like to analyze?
Kids First: Congenital Diaphragmatic Hernia
Kids First: Congenital Heart Defects
Kids First: Ewing Sarcoma - Genetic Risk
Kids First: Orofacial Cleft - European Ancestry
Kids First: Syndromic Cranial Dysinnervation
Kids First: Adolescent Idiopathic Scoliosis
Kids First: Disorders of Sex Development
Kids First: Orofacial Cleft - Latin American
Kids First: Neuroblastoma
Kids First: Enchondromatoses
Kids First: Familial Leukemia
Kids First: Orofacial Cleft - African and Asian Ancestry
Kids First: Novel Cancer Susceptibility in Families (from BASIC3)
Kids First: Osteosarcoma
Kids First: Craniofacial Microsomia
Kids First: Kidney and Urinary Tract Defects
Kids First: Microtia - Hispanic
Kids First: Intersections of Cancer & SBD
Kids First: Esophageal Atresia and Tracheoesophageal Fistulas
Kid First: Hemangiomas (PHACE)
Kids First: Nonsyndromic Craniosynostosis
Kids First: Myeloid Malignancies
Kids First: Leukemia & Heart Defects in Down Syndrome
Kids First: T-Cell ALL
Kids First: Cornelia de Lange Syndrome
Kids First: Bladder extrophy, Epispadias, Complex
Kids First: Laterality Birth Defects
Kids First: CHARGE Syndrome
Kids First: Orofacial Clefts - Philippines
Kids First: Fetal Alcohol Spectrum Disorders
Kids First: Intracranial Germ Cell Tumors
Kids First: Structural Defects of The Neural Tube
Kids First: Recessive Structural Brain Defects
Kids First: Chromosome 18 Structural Birth Defects
Children's Brain Tumor Network (CBTN)
Kids First: Whole genome sequencing studies of multiplex nonsyndromic cleft lip/palate families
Do you plan to cross-analyze Kids First data with other data?
No
Yes
If yes, what other data source?
What analyses you intend to do on the CAVATICA platform?
Have you previously participated in KF cloud credits as an X01 or R03 investigator?
No
Yes
If so, is this an additional allocation request?
No
Yes
*Please note that dbGaP approval is required to connect with controlled-access (generally, individual-level genomic) data. Requesting dbGaP access requires a separate proposal and submission. To submit a DbGap Data Access Request,
click here
.
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