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孩子的价值至上
孩子们在科学研究中处于领先地位
每年有数千名儿童被诊断患有癌症和先天性疾病, 在情感和经济上影响家庭. 加布里埃拉米勒儿童第一儿科研究计划 (孩子第一), 由以下机构资助和管理 美国国立卫生研究院 (NIH) 共同基金, 旨在通过改善我们的诊断方式来减轻一些困难, 对待, 并最终消除这些威胁. 该计划对于研究人员来说是宝贵的资源，也是儿科研究的一项重要投资.
儿童第一数据资源中心 (儿童第一刚果民主共和国) 为儿科癌症和先天性疾病提供可靠的遗传和临床数据. 世界各地的研究人员都可以访问 Kids First 数据, 免费, 帮助我们更好地了解这些疾病.
虽然这个有价值的计划是通过 2024, “儿童优先”需要持续的支持，以便在未来顺利开展其重要工作.
别说话, 开始做
加布里埃拉的故事
这 加布里埃拉·米勒儿童第一研究法案 于四月颁布 2014, 10 岁儿童癌症研究倡导者加布里埃拉·米勒 (Gabriella Miller) 因无法手术的脑肿瘤去世后不到六个月.
她为提高儿童癌症意识所做的努力, 及其与先天性疾病的关系, 为儿童癌症慈善机构筹集了数十万美元. 通过她的热情倡导, 国会通过了《加布里埃拉·米勒儿童优先研究法案》，将在十年内向 NIH 共同基金提供资金，以支持儿科研究.
加布里埃拉的母亲, 埃林·米勒, 继续她女儿的工作，通过以下方式为孩子们寻求更好的治疗和治愈方法： 粉碎核桃基金会.
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PHILIP LUPO, PhD, MPH
BAYLOR COLLEGE OF MEDICINE
By using Kids First data, we can explore a range of questions related to the overlap between anomalies and cancer in ways that were previously impossible.
IAN KRANTZ, MD
CHILDREN'S HOSPITAL OF PHILADELPHIA
I'm excited to be involved with Kids First. Data sharing for research will drive discovery and understanding of birth differences, leading to better outcomes for affected children and families.
ARIADNE LETRA, DDS, MS, PhD
UNIVERSITY OF PITTSBURGH SCHOOL OF DENTAL MEDICINE
Kids First is valuable because the sequencing resource provides the basis for identifying genetic contributions to common and deforming craniofacial birth defects.
AMANDA HADDOCK
PARENT, PRESIDENT, DRAGON MASTER INITIATIVE
Kids First is leading the way in a rapidly changing healthcare and research environment. They saw the need to empower research across conditions that have.
ELLYN MILLER
GABRIELLA'S MOTHER; President, Smashing Walnuts Foundation
Kids First supports lifesaving research of treatments for childhood cancer for use by researchers in the USA and around the globe. We can’t afford to lose this most valuable program.
NECIA SABIN
HETOROTAXY CONNECTION
Until you have had doctors google your child's diagnosis, you will never understand the isolation and loneliness a parent feels when their child has a rare disease. The Kids First Database has given our community the opportunity to bring medical professionals together and give them the information they desperately need to advance research and care for the Heterotaxy community. We are beyond grateful for this amazing resource and are excited to see the advancements made with it.
News & Articles
Cross-Institution Database Drives New Pediatric Research Opportunity
Childhood cancer research has taken a monumental step forward with the launch of the Childhood Cancer Data Initiative (CCDI), a groundbreaking effort spearheaded by the National Cancer Institute (NCI). Childhood…
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New Data Sets from NIH Kids First Program Accelerates Rare Childhood Disease Research
This article was published as a news release on EurekAlert, shared on Feb 5, 2025. The new Kids First datasets advance our understanding of how genetics contribute to childhood cancers…
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Children’s Brain Tumor Network Dataset Now Accessible on Kids First Data Resource Center Portal
View this press release on PR Newswire The Gabriella Miller Kids First Data Resource Center (Kids First DRC) announces the addition of the full Children’s Brain Tumor Network (CBTN) dataset…
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NIH Kids First Program announces the release of three new pediatric research datasets exploring childhood rare disease
These new datasets further support the effort to understand the genetic causes and links between childhood cancers and congenital disorders. WHO: The Gabriella Miller Kids First Pediatric Research Program (Kids…
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